University of Minnesota researchers can now access high-quality COVID-19 patient data for their research, thanks to a new registry from CTSI.
The COVID-19 Registry houses the electronic medical records of COVID-19 patients as well as those with related conditions and symptoms. It includes patients that meet any of the following criteria:
- A diagnosis of COVID-19, influenza, pneumonia, or acute respiratory distress syndrome (ARDS).
- Symptoms related to COVID-19 (e.g., cough, shortness of breath, fever).
- A COVID-19- or flu-related lab result.
CTSI is committed to protecting patients’ privacy and use best practices for securing, managing, and provisioning researchers’ access to data.
Approved researchers will have access to clinical data about each patient, including:
- Demographics, including age, sex, race/ethnicity, social history, and address history
- Encounter information (date, type, center)
- Reason for admission
- Discharge disposition
- Vital signs
- Notes for the qualifying encounter
- ICU/ventilator data
Researchers can use data to conduct retrospective cohort studies and observational studies.
Researchers should ensure the project is compliant and follows the guidelines for U of M COVID-19 research. All COVID-19-related research must be approved by the Tier 1 Research Committee by submitting this COVID-19 study form. Once approved, you can request data for your study.
If you have questions, please contact one of the project leads affiliated with CTSI’s Best Practices Integrated Informatics Core (BPIC):
BPIC Scientific Director for Clinical Informatics
Director of Operations, Clinical Informatics Services
Manager, Research Data Management
You can also connect with experts in other aspects of clinical research through the Clinical Research Support Center.